|
Dr Susan Mary Zachariah,Senior Specialist, Child and adolescent Health, Aster Medcity, Kochi
Autism Spectrum Disorder is a neuro developmental
condition whereby children have difficulty making sense of the world around them
due to difficulties with communication and social interaction. They also have
repetitive, restricted patterns of behavior and interests; as well as sensory
hypersensitivities or hyposensitivities.
The incidence of Autism Spectrum Disorder is increasing the world over. The
Center for Disease Control, USA has estimated that currently one in every 68
children have autism spectrum disorder.
What is autism spectrum disorder?
Autism Spectrum Disorder is not a psychiatric illness or ‘bad behaviour’. Autism
Spectrum Disorder is a neurodevelopmental condition. This means that there is
some alteration in the normal development of the brain. There is altered
connectivity in the brain when compared to children without autism spectrum
disorder.
This altered connectivity can be understood in simple terms comparing it to
faulty wiring in a house. When there is faulty wiring in the house, some
switches may work, some won’t, in some places the switch of the fan will turn on
the light and in some cases, there will be short circuit. Many of the symptoms
of autism can actually be explained using this simple imagery. Sometimes
children with autism do not respond to name call, but respond to certain other
sounds. Sometimes they may have sensory overload similar to a short circuit.
Children with autism spectrum disorder are trapped in their own world, unable to
interact and communicate with those around them; not because they don’t want to,
but because they lack the skills that come so easily to the rest of us.
There are multiple causes of autism spectrum disorder. Genetic, metabolic,
structural damage to the brain, toxins and pollutants and environmental related
are the most common causes associated with autism spectrum disorder.
What are the symptoms of Autism Spectrum Disorder?
Children with autism spectrum disorder have symptoms relating to their
difficulty with communication, social interaction as well as repetitive and
restricted patterns of behavior. The early warning signs of autism spectrum
disorder are:
-No eye contact by 6 months of age
-Not responding to name call by 12 months of age
-Does not point at objects at 14 months of age
-No ‘pretend play’ by 16 months of age
-Prefers to be alone, doesn’t initiate interaction with others
-No social smile; does not seem to enjoy being with people.
-Delay or regression in speech and language skills
-Can recite numbers/alphabets/sing rhymes but unable to express basic needs vocally.
-Lacks motivation to communicate
-Exhibits difficulty in imitating actions or words
-Repeats words and phrases heard over and over again
-Gets upset by minor changes
-Has obsessive interests
-Repetitive movements like flapping, spinning, rocking etc
-Unusual reactions to sounds, lights, smells, etc
-Lack of social and emotional reciprocity, no turn taking during play
-Difficulty identifying and expressing emotions
Autism spectrum disorder can be identified as early as 6 months of age. The
earlier the diagnosis, the earlier the intervention and the better the outcome
for children with autism spectrum disorder.
Common myths and misconceptions about autism spectrum disorder:
1. Children with autism spectrum disorder are mad, willfully bad or just
being stubborn
Autism Spectrum Disorder is a developmental disorder. They do not act that way
because they purposely want to. What such children need are acceptance and
regular training
2. Autism is only a speech disorder
Children with autism spectrum disorder have a social communication disorder -
both verbal as well as non verbal communication like eye contact, pointing,
using gestures, etc. They have limited understanding of emotions, social
interaction and social rules. Initially, the child may have more repetitive than
meaningful speech, but later continues to have difficulties using language for
social purposes.
3. Autism Spectrum Disorder is caused by vaccines or bad parenting
Though at one point in time, bad parenting or ‘refrigerator mother’ was thought
to be a cause of autism, it has been proven conclusively to be not so. Also
multiple studies have proven time and time again that there is no association
between vaccination and autism spectrum disorder.
4. Children with autism spectrum disorder are dependent on their parents
for life.
Though autism spectrum disorder is a lifelong condition, with early intervention
and consistent training, many children can go on to lead independent and
successful lives.
5. Children with autism spectrum disorder are mentally retarded.
More than 45% of children with autism spectrum disorder have average or above
average intelligence. Only around one third of children with autism have actual
intellectual disability. Most children with autism do very well once their
talent and field of interest is identified and they are encouraged to grow in
it.
What are the treatment modalities for children with autism?
Treatment for autism spectrum disorder needs to be done early. It consists of
behavioural therapy (to help them regulate their behavior as well as to promote
learning), occupational therapy (to work on skills, activities of daily living
and sensory integration), speech language intervention (to work on joint
attention, verbal and nonverbal communication skills to enhance social
interaction), special education (for a more practical based learning). There is
currently no evidence for treatments using transcranial magnetic stimulation,
acupressure / acupuncture, hyperbaric oxygen therapy, stem cell therapy.
Medication is used in only a very selected group of children with autism
spectrum disorder when behavioral management strategies have failed to help them
control their excessive aggression, motor stereotypies and self injurious
behavior.
How can parents help their child with autism spectrum disorder?
The best way to help your child get the correct help is to be aware of the early
signs of autism and to seek help from a developmental paediatrician at the
earliest. Remember, the earlier the diagnosis, the earlier intervention can
start and the better is the outcome.
For parents who already have children with autism spectrum disorder, the
following few principles need to be remembered:
1. YOU are your child’s primary therapist.
Irrespective of how many centres you visit or who all provide therapy for the
child, nothing works as well as parents being the therapists for their child.
Time and again, studies have shown that parental motivation is the biggest
factor that causes a child with autism spectrum disorder to improve. Dedicated
persistent efforts by parents with their family, professional and community
support over the years would definitely help the child to grow into an
independent and happy adult.
2. Have a structure to the day
Children with autism like to know what is next – unpredictability is not their
strong suit. Have a daily schedule incorporating time for fun as well as
learning activities with opportunities for interaction with other people.
3. Use more pictures, less words
Most children with autism are visual learners. They are able to understand
pictures better than words. So, use pictures wherever possible and do not talk
in long sentences to them. Use short, concise sentences.
4. Have more physical play, get back to nature
Physical play helps to control hyperactivity as well as leads to secretion of a
neurotransmitter called dopamine which improves attention. Playing barefoot in
nature also helps with sensory integration.
5. Decrease / restrict visual media in any form
As children with autism prefer to be alone, isolating them further by using
various gadgets again decreases their initiative to interact with others.
6. Music is your friend
Most children with autism like music. Studies have shown that children with
autism comprehend music better than oral instructions. Using a musical tone
while speaking to your child with autism will gain his/her attention better, and
they may follow it more easily. Teaching music is also a good way to promote
fine motor skills as well as verbal imitation.
At Aster KIND (Kid’s Integrated NeuroDevelopmental Centre), we have a
multidisciplinary team consisting of a Developmental Paediatrician, Pediatric
Neurologist, Occupational Therapist, Speech Language Pathologist and a Clinical
Psychologist, who work together to enable you to help your child to reach
his/her optimum potential and to help them lead successful lives.
|